Category Archives: Achromatopsia

My Weight Loss Journey

Like so many people, I have struggled with my weight.

I was always a bigger child; always a little more rotund than my older sister, but, that didn’t really bother me when I was young. I was never insecure about who I was as a kid. I was happy being the way that I was.

It was only when after I became a teenager that I started to notice that I looked a bit different from most of my friends. In two ways of course. I mean I realized that I was a bit heavier than the next kid and also I was becoming more aware of my limitations as a visually impaired person. (but the latter is a story for another time)

Even though I became aware of my size when I was 13, I was only slightly concerned about the way that I looked, and not at all concerned with my health. Looking back, I’m happy that I wasn’t super anxious about what others thought of me, but I wasn’t smart about the way that I viewed my health. I wasn’t taking care of my body, and that was a problem.

So, after a few more years of not caring, (I was 16 at this point) my family decided that they were going to start going to the gym, and I agreed to get a membership also. I remember going for a few weeks and then one day, I thought it would be a good idea to weigh myself. Well, it was a good idea. I have never been so disappointed in my entire life! I thought the scale was wrong, but I weighed myself again and it said the same thing. 206 pounds.

There were so many emotions going through my head for the next few weeks. Anger, disappointment, frustration… I just couldn’t believe how much I weighed. How unhealthy I was. I was so upset. But, these emotions fueled my determination to fix this problem. I went to the gym, and tried to eat better, and tried to be a healthier person in general, but at the time. It was hard though. I was young and I didn’t really know what I was doing. I didn’t have very many resources, or a lot of knowledge of how to go about losing weight.

Despite not really knowing what I was doing, I did manage to lose about 20 pounds over about 2 years, which was incredible, but I still needed to lose a few more in order to reach a more healthy weight

But my weight loss was put on hold because I went to college, and fell back into a slump of not eating right. I didn’t gain any weight (thankfully) but, again, I wasn’t taking good care of my body.

After I graduated, I went to camp for the summer and again, didn’t really do anything to take care of myself and continued eating poorly and not exercising. Bu then the fall came… And something happened that I can’t even really describe, or remember correctly. I remember there was a moment, at the end of the summer, when I was in the change room, trying on clothes, when I looked at myself, and said “I don’t want to be like this anymore” And that’s really the only part that I remember. The next year was honestly a blur, but  I jumped back on the “being healthy wagon” and I did an extraordinary thing! I completely cleaned up my act. I stopped eating junk. I started exercising between 4 and 5 times a week, and between September 2012 and May 2013, I lost 40 pounds!!! 40 pounds!! Looking back it still amazes me that I was able to accomplish that! I started my journey at 206lbs and by 2013 (19) I was down to 145lbs. That’s right, I lost 61 pounds!! I was so proud of what I had accomplished. I finally liked the way I looked. I enjoyed buying clothes and I was finally healthy!!

But like so many others on the journey to better health, I was not able to maintain my weight loss. I went to camp in the summer of 2013 and went through a lot of emotional stuff in my life and gained almost 25 pounds. which was unfortunate, but I learned a lot about myself that summer and despite my weight gain, I was happy with how I grew, and I knew that I would be able to lose it again.

And I did. sort of. I lost 10 pounds, over the next year, and by the time my wedding day came, I was 160 pounds. Not too bad, but still not what I wanted to be at. I will say this though, looking back on my wedding day, I don’t think that I really looked overweight or unhealthy, and I’m very pleased with how I looked and felt on that beautiful day

In the beginning of 2015 I lost an additional 10 pounds so that brought me back to 150, so close to where I had once been at! Since then I’ve been in a constant state of fluctuation in my weight. In September of 2015 Dylan and I went on a special diet. It’s called the Specific Carbohydrate Diet. This diet is made for people who have Crohn’s Disease, and similar conditions, but to make it easier on Dylan, and to make life less complicated, I went on the diet with him. While on this diet I lost 7 pounds, which put me at my all-time lowest weight. 143lbs. But because of life circumstances we weren’t able to maintain this diet, and so my weight fluctuated, yet again!

And that’s how it is to this day. I’m currently sitting at 153 pounds, but over 2016, my weight has been anywhere from 148lbs to 155lbs! And that’s mostly because my eating habits aren’t always the best. There are weeks that go by when I don’t exercise at all, or eat very well. But then I’ll usually have a few good weeks in between where I’m very conscious of what I’m putting in my body, and making sure I’m being fairly active.

But that’s why I wanted to share my story with you. To hopefully inspire those of you who share a similar life path, and to offer some empathy to those who have reached their goals but have not been able to sustain them. We all fail sometimes, and there are many days when I want to just give up on being healthy, and sit and eat an entire bag of chips, but it’s on those days that I look back on my life and I see how far I’ve come, and I find the motivation to keep going, and never give up.

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Being a Housewife is Hard



As Web-141I said in my very first post, I am a housewife.

Almost as long as I can remember, I have wanted to be a housewife. I mean, when I was like 13, I wanted to be a vet or a horse trainer, but that’s beside the point. When I actually started contemplating what I wanted to do in life and where I wanted to go, it always came back to the fact that I wanted to stay at home, take care of my husband and eventually, my kids.

Well, the opportunity came for me to fulfill my dream much sooner than I thought it would.

shortly after we got married I was still working at Wal-Mart, but I had approached them about changing my work hours to accommodate a bus schedule, but they were unwilling to work with me. Which is unfortunate as I am not able to drive due to my vision loss.

So, after discussing the whole situation with Dylan,  we decided that it was time for me to move on from that chapter of my life.

So that’s where my housewife journey began! I was so excited to start doing what I felt I was meant to do!

But, never. Not in a million years, did I imagine that doing what I love would be SO hard!

I know how strange that must sound. I mean all I do is stay at home and do whatever I want, right? Right? Well it would seem that life would be that simple, but the fact is, being a housewife is really hard!

It’s not the work itself that I’m talking about here. Aside from doing dishes, which is my least favourite task, I really quite enjoy puttering about the house cleaning, tidying, and making food for my amazing husband. The part that I find hard, is that I didn’t realize how difficult it would be to stay motivated to do the things that I love.

I’ll admit, that there are definitely days when there isn’t a ton to do around the house. But there is ALWAYS something to do. But all too often, on the days where there isn’t a whole lot of jobs to be done, I find myself sitting on my couch doing one of three things: sleeping, sitting on my phone, or watching tv. Sometimes all three! And if I spend one afternoon doing this, I find it hard to not repeat the same thing the next day.

And lately, I’ve found that more and more I’m sitting on the couch watching the time go by until Dylan gets home from work. Which is not ok! Of course there is nothing wrong with taking a day to just relax and have fun, but it’s not acceptable to just sit and waste the entire day on electronics!!

So over the last week, I’ve been mulling over what to do about my issue of laziness. I started thinking about all the things that I still want to accomplish in life, and aside from all the work that I need to be doing in a week, what kind of hobbies I could get into, so that when I am bored during the day, I will have something to fall back on!

So I made a list of a few things to choose from when boredom strikes!

  1.  Exercising! I’ve been wanting to get back into regularly exercising and taking care of my body.
  2.  Reading! I have a  rather large pile of books that I’ve been meaning to read but have always made some excuse about why I didn’t have time to read.
  3.  Knitting! I LOVE knitting!! and it only seems appropriate to  work on something that I love, especially since I have so many projects to finish!
  4.  Education! For months I’ve been contemplating going back to school, so I’ve been researching several different certificate programs that I’m hopefully going to take later in the year!
  5. Blogging! I’ve really enjoyed writing and sharing my journey with people via this blog, so I really hope to get more involved in writing posts and keeping you all up to date!
  6. Baking! Since I was about 15 I have loved baking! It’s a great pass-time, and the benefits of baking is that there are tasty things to eat at the end! Plus, I’ve been wanting to experiment more with recipes!

On top  of all these hobbies, to distract me from the temptations of technology, I’m going to try my best to make lists of the tasks that I need to complete around the house on a daily and weekly basis. Hopefully this will keep me more on track!

So, I have my work cut out for me, that’s for sure! But I wanted to share some things that I’ve been struggling with for the past few weeks, and I wanted to just share some of my hopes for the future, in order to keep myself accountable and to be more effective in fulfilling my dreams of being a great housewife!

I’ll try to keep you all posted on my progress!

New Glasses

If you are someone who wears glasses on a regular basis, I’m sure you’re quite familiar with process of going to the optometrist every year or so and the joy (or maybe dread) of getting new glasses!

For me, because I was born with my eye condition, I have been wearing glasses since I was three years old, so I’m sure you can imagine how happy it made me when I got to trade in an old pair for a new one!

Growing up, I was only able to get new glasses every two years, which, when I was younger, was a bit of a challenge because usually by the time those two years was up, the frames were literally being held together by tape!

On the opposite year, though, going to see the optometrist wasn’t nearly as fun, because I still had to go for a routine checkup but I would leave with the same, old, generally falling apart pair of glasses.

And that’s how it went for about fifteen years! Seeing the doctor every year, and getting new glasses every other year. This carried on until I was eighteen. I was officially an adult, and because of that I had to start making my own appointments and, of course, paying for my own eye wear.

So, being the typical teenager that I was, I put off going to see my doctor, which, in turn, meant no new glasses for me… I had planned on going before my wedding, but I never made it… And I just kept putting it off… and putting it off…. Until one day, while I was cleaning the bathroom, I was cheerily going about the usual business of cleaning the toilet, when before I realized it, my glasses had slipped off my nose and into the toilet bowl!!! Gross, does not even begin to cover it… But it was in that moment that I declared to myself that I was going to the doctor as soon as possible to get new glasses because, I was too disturbed to wear, my now toilet soiled, old pair.

I made the appointment, and about two weeks later, I went in for my routine check up, but I was mostly just excited to finally replace my old, dirty and rather outdated frames!

I browsed for about an hour or so before I settled on a pair… I’m a very indecisive person, and it’s even more amplified when it comes to choosing glasses…. but with the help of my awesome husband, and the lovely office staff I found a pair that I was 90% sure of… I say 90% because I’m almost never 100% in love with any set of frames because I’m never quite sure how they’re going to look with the orange lenses, and it’s really quite hard for me to imagine… anyway, they sent me on my way saying that I should hear back in about six weeks…

I was so excited when I got the call that they were in! Finally, after 4 long years, I had new glasses! So I drove.. well, my husband drove me, out to the doctor’s office to pick up my new glasses.

And then I saw them… Honestly, my first reaction was “oh. my. goodness. I hate them” followed by, “What was I thinking??”. The lenses were huge in comparison to my previous pair… I had not anticipated them being so big… It looked (or so I thought) as though my face had been swallowed by orange!!

Of course, this is not the first time that I was disappointed in the frames I chose. I had happened to me once or twice when I was younger… But it made me quite upset this time around, because I had loved the frames when I picked them out, but with the orange lenses I really did not… But the reality was, that I needed them, so I (begrudgingly) took them home… I wore them all that day, not really enjoying my day because I thought that I looked rather dumb… not to mention they gave me a huge headache, and I had to go out and buy a new pair of sunglasses that would fit over top of my new monstrosities… Needless to say, that wasn’t a day that I wanted to remember..

Truthfully, I’m still not in love with my new glasses, even after a week with them, but with a lot of encouragement from Dylan, and overall, positive feedback from my friends and family, I am slowly but surely coming to terms with them, and even though I’m not crazy about them, I’m willing to tough it out and hope that I learn to love them!

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What do you guys think?

Welcome

Hello there!

My name is Bethany, and I am so happy that you decided to drop by! Grab yourself a snack or a cup of coffee (or both) and join me on my adventure!

First, a little background story: As I said above, my name is Bethany, I’m 22 years old, married to my amazing husband, Dylan and I am a stay at home wife. I also have a very large family, which includes my parents, 5 siblings(2 girls, 3 boys), 2 sisters-in-law, and two beautiful nephews! Dylan’s family is also quite big, and it includes his parents, and his 3 sisters!

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Now that you know a little bit more about my beautiful and very extensive family, it’s time to focus a little bit more on my reasons for starting this blog.

I’m sure some of you are curious as to why someone would name their blog “ColourblindLife”, and I admit it’s a bit strange, however, the reason I chose such an odd name is simply explained by the fact that I am completely colour blind. That’s right, you heard me. 100% colour blind. I have never, and will never see colour.

Now, there is a reason for this, it’s not like I just woke up one day and couldn’t tell what colour the sky was! I was born with a condition known as Achromatopsia. The technical definition of this condition is, “a non-progressive and hereditary visual disorder which is characterized by decreased vision, light sensitivity and lack of colour vision. it effects 1 in 33,000 people in the US”

To put it simply, I am legally blind, my eyes are super sensitive to light, which is why I wear orange glasses, and I can see no colour. Just black and white for me!

Please don’t misunderstand me, I am in no way here to write a sad story about my condition. Or to complain about how hard life is for me, I am simply here to tell my story.

I get asked, on almost a daily basis, how I function without colour vision. How I do simple tasks like going shopping by myself and how I choose my nail polish colour and everything in between. So I decided that it would be fun to start my very own blog, and share with you what  life is like in black and white.